What is SMA?
Spinal Muscular Atrophy is a group of inherited and sometimes fatal diseases that destroy the nerves controlling voluntary movement, such as crawling, walking, head and neck control, and swallowing. This is a chronic, progressive diesase that has no cure. Research funds are desperately needed to hasten the treatment of these diseases so that a cure will be found. The disease is deceivingly common, with one in every 6,000 live births affected. One in 40 people carry the SMA gene. Type 1 SMA is the number 1 genetic killer of children under age 2. Children with Type 2 SMA face good chances of living into their adolescent years, and some children with Type 3 SMA can lead fairly normal lives.
About Families of SMA
Devoted to a cure, Families of SMA is 100% volunteer and the only national organization which specifically offers family support and networking for SMA diseases as well as education and public awareness of SMA; pools equipment to ease the high cost of medical expenses; and provides funding for full-time genetic research. For more information about SMA view the Families of SMA national Web site at www.fsma.org